Resources
Note: all of the listed resources have been mentioned in our podcast, this is not an exhaustive list related to dementia.
On this page
Advocacy/Awareness
Charter of Rights for People Living with Dementia
Convention on the Rights of Persons with Disabilities
Dementia Alliance International
Global action plan on the public health response to dementia 2017 - 2025
International Federation on Ageing fondly
North West Dementia Working Facebook Group
Ontario Neurodegenerative Disease Research Initiative
Summary of expertise and experience – Members of the Ministerial Advisory Board on Dementia
10 priorities for dementia research in Canada
Roundtable Discussion with the Minister of Health DAC Speaking Remarks
Arts & Dementia
No Act of Love Is Ever Wasted: The Spirituality of Caring for Persons with Dementia by Jane Marie Thibault, Richard L. Morgan [book]
Hey do you know me by Danny Potts performed by Lisa Brokop [song]
Dr. Potts interview on arts and dementia
Cynthia’s Story: Unmasking the stigma of dementia
Intergenerational Choir – Circle of Music
Hear and Now: Intergenerational Orchestra
Cathy Greenblat - Love Lives Here (film)
Journal article: Dancing With Dementia: Exploring the Embodied Dimensions of Creativity and Social Engagement (https://academic.oup.com/gerontologist/article/61/5/714/5903628) [see attached pdf]
link to the Sharing Dance site: https://oa.sharingdance.ca/
research project website: https://sdseniorsresearch.com/
https://www.dancingwithparkinsons.com
https://daanow.org/
Reimagining Dementia Website: https://www.facebook.com/reimaginingdementia/
Call to action: https://drive.google.com/file/d/1tl4vF-62FGbHg42ierSiKPg9cvyRDDnp/view
Article: https://content.iospress.com/articles/journal-of-alzheimers-disease/jad210057
Lyrics to “Let’s Reimagine”
created by Reimagining Dementia: A Creative Coalition for Justice
Care Giver/Family Support
By Us For Us Guide - Before/Early Diagnosis
Frontotemporal Dementia (FTD) Durham Facebook Support Group
COVID-19
The Star: A day in the life and death on the Sheridan villa covid unit
The Star: what the pandemic isolation has done to long term care residents
The Star: covid 19 has exposed what long term care lacks will the response fix it
Dementia Friendly Communities
Become dementia friendly Canada
Jim Mann: Dementia Friendly Communities
LGBTQ2S+ & Dementia
https://open.alberta.ca/dataset/0432e7da-2884-4a39-8b17-6199cadd4b7b/resource/5aeb5c77-bd1f-4963-ae4c-893e7c738340/download/social-isolation-l
https://www.cmaj.ca/content/191/31/E851
https://xtramagazine.com/health/queer-trans-care-for-older-adults-18373
https://www.virtualhospice.ca/2slgbtq/
Literature
Austin MaCauley - I am Grateful
Living Well With Dementia: Care and Support
Roxanne's Poems - Poems Written by a Person Living with Dementia
Living with Dementia
Improving the Care of Persons with Dementia in Rural and Remote Areas
Meet Roger - Dementia Lives Here
Midstage Dementia Facebook Group
Learning the Ropes for Living with Mild Cognitive Impairment
Mapping the Dementia Journey
Changing and Adapting
Videos:
Award winning: Dementia. The impact of diagnosis
Changes in Personality and Behavior of A Dementia Patient
Dementia & Sensory Challenges - My life living with dementia
Living with Dementia: Changes we noticed
Teepa Snow Discusses the Ten Early Signs of Dementia
What annoys you most about living with dementia?
Women with Dementia Living Strong
Books:
Workbooks:
Spirituality and Dementia
Dementia Friendly Worship - Multi-faith Chaplains Communities
Janice Hicks Reflects Spirituality and Dementia
Ministry with the Forgotten (2020) By Kenneth Cole
Spirituality and Aging Seminar (UWaterloo)
When Words Fail: Practical Ministry to People with Dementia and Their Caregivers